Sleepless in Frederick

This morning Ella woke up with swollen eyes, we really did not think much of it at first...As the day moved on Ella was not really acting like herself, she had no desire to swim in the pool with everyone and she had hives all over. She did as for some yogurt so we gave her some, my guess is not that the yogurt cause this reaction but something sure did.

We immediately rushed to the Dr.'s office and spoke to Dr. Brenner many times, needless to say I was in tears....We still do not know what has cause such a reaction I guess it could be alot of different things. I would imagine that I am going to be spending my night making sure my baby is still breathing.... Who needs sleep I gave that up with motherhood right????

Nikki

Weekly Update

Well we are settling in to our somewhat daily routine now.Ella goes tommorow for blood work and Thursday we are off to see Dr.Brenner (Ella's cardiologist).Hopefully we will get goods news on how she is doing on the coumadin and improvement on the size of her liver.The girls got a visit from Auntie Jen last night,and Mama is going out to dinner with no kids tonight...Yipee!
Will keep you posted as to how the appointments turn out.
Nikki

My First Post

This is my first lesson with Lisa this morning.All is well Ella is off with Auntie and Pop-Pop today to do some pottery.Baby Kate is with her Nana. Jason and I are off for some R&R at Castle land to see his cousin Stuart,who is visiting from England.Ella is still whining daily and trying to get her way.Hopefully this will all stop soon..Nikki

Lisa's last Post

Ella just got home from her follow up visit at JHU,stitches are out and her "baby scar"is looking good.Her liver is still a bit in-larged due to post Fontan but is expected to go down.we will remain in a handful of meds. The next 5m Ella well have weekly visits at Hopkins, fun fun huh....Nikki is going ot know Baltimore inside and out by Christmas....

Dr. Brenner has the pleasure of Seeing Both Ella And Tatum next Thursday....Ella is breaking him in early and Tatum is the end to his day Won't he be excited for his two favorite Mom's LOL...

Sadly this is my last post Nik is getting her Blogger Class first thing Sat Morning :) She has tons of pictures to post so Look forward to Sat's post...

there are Hospital pics as well as yesterdays fun finger painting pics with her aunt Ra-Ra....I hope you all have a wonderful weekend

Lots of Love :)

Lisa

Home Sweet Home

Homeward Bound!!!!!!!!!!!!

Just spoke to Nik and they are filling out paper work and packing up the room. She was waiting for Dr. Brenner to come by then they are out of there!!!!!

I think I now have Nichole addicted to blogging so I'll be over her place giving her a crash coarse.....It is pretty easy :) She is planning to keep her blog up just to make it easier for you all to watch the girls grow.

Thanks for all the prayers and support while they were there and always :)

Lisa

Going Home.....MAYBE:)

We have good news all around!!

Ella was unable to go home yesterday - but we are hoping for today. Still quite a feat as her open heart surgery was a week ago today!!!
She was totally excited by a visit from her best friend Alison. They held hands and walked the ward , of course the nurses were just laughing at our little princess. They shared Scooby Doo push ups and had quality "girl talk"!!

They gave Ella some pain meds for the first time since she got to the peds floor. What a difference! The small dose gave her the ability to walk, play and move more comfortably. Ella told Mom and Dad that she is ready to go home!!