here is a quick synopsis on Ella...
Ella was born with tricuspid atresia. Tricuspid atresia means that she does not have a tricuspid valve inside her heart. Since the valve is not present the right side of the heart has problems developing due to lack of blood. Your heart is made up of 4 sections that comprise of 2 pumps and 2 holding chambers. One of the pumps provides blood to the lungs and the other provides blood to the body. Ella was born without the pump that provides blood to the lungs. She has undergone multiple open heart surgeries to help create a palliative correction so she can live a relatively normal life. On the 16th of July at John’s Hopkins University she will undergo what is called the Fontan procedure. This will hopefully be the last staged open-heart surgery required for many years to come. Of the many surgeries that Ella has had performed this one will probably be the hardest recovery to date. Please keep Ella in your prayers and thoughts over the next couple weeks while she undergoes the surgery and fights back during the recovery. We well continue to update this blog with Ella's progress...
Kate is doing Great and getting so big, it has been crazy having a regular baby on a normal growth and development schedule and it keeps Nikki very busy :)
We are all just trying to get through this tough time, we are so glad we have our family and friends around to help ...your support and prayers alone do more then you'll ever be able to imagine and for that we say thank you. We are spending the night on Sunday at the Children's house. This its basically free, non-profit, for the family's of children having surgeries.They are asking for phone cards in the smallest donations or small Safeway cards like 10 dollars or so..If you can swing any donation that's great, just let me know and I can get you the info I have not already email it to you.
Ella is in terrific hands and we're confident with all her doctors. We are truly lucky to have such a great hospital so close.
16 comments:
Lisa,
I love it and the pictures are great!!we will keep everyone posted!
Nikki
Nikki, I am still available to help with Kate, or whatever...
301-685-3540. I am not blog
savvy, so I hope I am doing this correctly! God speed to healthy
recovery...mary beth oberlander
I am so glad you like the Blog, once (if ever ) you have time you'll love updating and your family and friends are gonna love it. I think I have all the bumps worked out but let me know if you want something changed :) Love Ya Tons!!!
Best Wishes for Ella's Fontan! Samantha is doing great since hers, and we are sure Ella will be a champ! We will say a prayer for her and your family.
Dave,Ginny & Samantha
Nikki & Jason,
Great pictures!! Mrs.Johnson and I want to visit, as soon as we're able.. just let me know. Tell Ella we miss her !
Love,
"Mrs.Eliff"
What a great idea!! DeAnn, Robert and I are definitely praying for Ella's quick recovery. Ella is so lucky to have such strong parents.
Any friend of Lisa's is a friend of mine. It sounds like you two were meant to be close with what was ahead of you.
Sending thoughts and prayers to you from Oregon.
Nancy, Brian, and Erik (2, WS)
Nikki & Jason,
We will be sending you love and prayers for a safe surgery and speedy recovery. We love you all! Ella will do great - she's one tough cookie! :)
Our love - Vicki & Eric
It's a shame that someone so precious has to go through this. I commend you and Jason for handling it so well. I wish Ella the best and for a speedy recovery.
i'm so excited to see this blog! thanks for such a great way to keep us updated. i just shared the site with rachel - she's getting all her art supplies out to make a picture for "big ella." where should we mail her creations? lots of prayers and hugs!! we'll check back in a bit!
love to all!
leah, greg, rachel and garrett
Our hearts go out to you guys & the extended Chavez/Moore families! Nik, hang in there kiddo...you're a tough lil sis!
Lisa, wonderful job & thanks for keeping us posted!
Love, "BECKER" & Boys XOXOXOXOXO
Teresa & Shawn said...
This post has been removed by a blog administrator
Thanks for the comment I removed it by mistake...new to all this but I did see it and wanted you all to know how thoughtful it was...sorry
NIKKI@JASON
We are so thankful that Ella is doing well. Thank you so much for having this blog.
Robert can't wait to meet his heroic cousin!!!!!!
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